This summer, my mom and I went to Spain, Portugal, and Morocco. Lisbon was an interesting city in Portugal. But I resonated with Spain much better than Portugal. The Portuguese language is a separate language than Spanish. I know Spanish much better than Portuguese. It was hard to interact with the people in Lisbon very well because of that reason. It was interesting place but not my type of place though.
February 17, 2023
I went to Morocco this summer with my mom. I thought Morocco was cool and it was also interesting. It was cool to ride in the sand dunes. It was cool to watch people ride on the camels. It was fun to watch the play except for the fireworks. The fireworks scared me but other than that I had fun that night. Morocco is one of those places I don’t need to go back to or want to go back to. Going to Morocco once is enough for me.
February 10, 2023
I liked Barcelona. It was an interesting city in Spain. Barcelona was fun to explore. it was fun seeing the city and scenery. I had a good time in Barcelona myself. I liked the Barcelona zoo. The tour in Barcelona was fun.
February 3, 2023
I loved Malaga because it was a beach place. It reminded me of L.A. The weather in Malaga is like L.A weather. Malaga is also walkable just like L.A. It was fun to explore Malaga. We enjoyed our time there so much it was hard to go back home at first. Malaga resonated with us so much that it was hard to leave. We were torn from Malaga Spain.
January 27, 2023
This summer my Mom and I went to Portugal. I liked Portugal. One thing that I liked at Portugal was the Portuguese villages. It was cool to go to the Portuguese villages. They are bright and sunshiny. Lisbon was a cool city. One downside about Lisbon is having to walk like a mountain goat. I liked being on coast by or near the Atlantic ocean instead of the river. My mom and I liked Portugal. I liked Spain better but Portugal I liked though.
November 25, 2022
This summer my mom and I went to Spain. I love Spain because people are friendly. You can enjoy evenings and relax without getting interrupted when out to dinner. We ate dinner late every night. There is not any pressure when cooking dinner. The price is not so pricey for getting groceries. It gets dark late at night. I like that we don’t need to rush on things in Spain. i love good beautiful weather in a lot of the places we went to in Spain. I think Spain is a beautiful country that Mom and I both loved when we went to Spain.
November 18, 2022
I get blood draws due to my TSC disease. The doctor checks my medicine levels and other things, like electrolytes, to make sure I am staying healthy. It does not take long but they can be scary. Blood draws have never been my favorite and they are still not my favorite these days either but I know it has to get done for the doctor, so she can look at the results then tell me either everything looks good or something is off. If something is off, the doctor comes up with a solution and we go with the solution and she tells us if the solution is working or not. Sometimes that means a lot of blood draws in order to check.
- I usually have the person doing the blood draw count to three before they poke the needle. So I know when it is coming. That helps me be prepared.
- If you don’t like the 1-2-3 countdown (it makes people nervous sometimes), try looking to look away from the needle. Sometimes it is watching the needle go in that makes people feel scared.
- It is good to have someone with you. You can look at them instead of the needle. I look at Jennifer my mom if I need to.
November 6, 2022
My MRI experiences are good although they weren’t always good. It lasts 60 minutes every time I do an MRI. I have them every year because they check my brain and my spine. I have to stay still for 60 minutes at each MRI. That is the hard part. When I was younger I had to be sedated because I couldn’t hold still.
My mom and I practiced meditation so that I could learn to keep still and wouldn’t have to be sedated. I hate being sedated. We had a friend who would do guided meditations with us and that was how I learned to keep calm and quiet even if I wasn’t sleeping. If you have trouble holding still, you might try practicing meditation or guided meditation.
Tips for going through MRIs:
- Stick ear plugs in your ears because it is very loud.
- Make sure you have a blanket on you also because you can get cold while staying still.
October 30, 2022
I have a shagreen patch due to TSC. This is a strangely shapped and bumpy lump of tissue on my lower back. It is a classic sign of TSC. I have lived with the shagreen patch my whole life. It doesn’t bother me. it is another thing that is just curious to me.
One of the doctors knew that I had TSC because of the shagreen patch on my back because they checked me over to see what was going on. The doctors discovered that I have TSC. I don’t understand why it is called the shagreen patch. I also don’t understand why the shagreen patch feels bumpy when I touch it or feels bumpy on my back.
July 26, 2022